We are excited to announce the launch of our first nationally branded event, the Walk & Roll to Cure FSHD. This signature fundraising event will take place in September… Read More »
Walking & Rolling Toward a Cure!
Seeking nominations for 2018 FSH Society Community Award
The FSH Society is soliciting nominations for its 2018 Community Award, for an individual or group that has been an outstanding contributor to the FSHD community. Given every two years,… Read More »
Mark Stone webinar now available
We’re very pleased to share the recording of our March 8th webinar with FSH Society President & CEO Mark Stone. In this webinar, Mark shares his experiences over the past… Read More »
Jim Chin elected chair of FSH Society Board of Directors
During its meeting in February, 2018, the FSH Society’s Board of Directors unanimously approved the executive committee’s recommendation for Jim Chin to be our next board chairperson. The vacancy was… Read More »
Project 2025
Dear Friends, At the FSH Society, our moonshot is to get to a treatment for FSHD―an intervention that will slow or halt the muscle deterioration. We have set a target… Read More »