During its meeting in February, 2018, the FSH Society’s Board of Directors unanimously approved the executive committee’s recommendation for Jim Chin to be our next board chairperson. The vacancy was… Read More »
Jim Chin elected chair of FSH Society Board of Directors
Project 2025
Dear Friends, At the FSH Society, our moonshot is to get to a treatment for FSHD―an intervention that will slow or halt the muscle deterioration. We have set a target… Read More »
2018 FSHD Connect preliminary agenda
We’re excited to share with you the preliminary agenda for our 2018 FSHD Connect conference, where a coalition of patient and families, top researchers and clinicians, and advocates will gather… Read More »
How the FSH Society drives FSHD therapy development
This infographic from our FY2017 Donor Report illustrates how the FSH Society is involved at every stage of the treatment development process. We invest strategically at key stages along the… Read More »
FY2017 Donor Report documents a year of change and growth
Download the FY 2017 Donor Report here Amazing! That’s the word that comes to mind when I look back on 2017 and reflect on all that has been accomplished as… Read More »