This year, to celebrate Rare Disease Day, taking place on Wednesday, February 28, we will be hosting a viral photo and video challenge! Share your rare talents and help us… Read More »
Rare Disease Day Rare Talent Challenge
FSH Society awards $690,894 in new research grants
A drug that helps muscles grow and regenerate. Molecules that occur naturally in our cells to repress DUX4, the “toxic gene” thought to cause FSHD. A deeper dive into why… Read More »
Win a day of self-care with Hollywood star Debby Ryan!
We’re excited to announce that YOU could join Debby Ryan for a self-care day in Los Angeles! Flights and hotel are included, plus donations to win benefit our work here… Read More »
2018 FSHD Connect Conference registration is now open!
Our community’s premier networking event for immersive learning and community building Our biennial FSHD Connect Conference is an amazing opportunity to meet hundreds of patients and families, as our leading… Read More »
FSH Society Talk Radio to interview authors of “I’ll Push You”
Listen live on BlogTalkRadio on Wednesday, January 31, at 9:00 pm EST, or listen and ask questions on the air by calling (949) 270-5953. On our next episode of the FSH… Read More »