We’re excited to share with you the preliminary agenda for our 2018 FSHD Connect conference, where a coalition of patient and families, top researchers and clinicians, and advocates will gather… Read More »
2018 FSHD Connect preliminary agenda
How the FSH Society drives FSHD therapy development
This infographic from our FY2017 Donor Report illustrates how the FSH Society is involved at every stage of the treatment development process. We invest strategically at key stages along the… Read More »
FY2017 Donor Report documents a year of change and growth
Download the FY 2017 Donor Report here Amazing! That’s the word that comes to mind when I look back on 2017 and reflect on all that has been accomplished as… Read More »
$133,254 awarded to FSHD Clinical Trials Research Network
The FSH Society has awarded a grant for a second year of support for the FSHD Clinical Trials Research Network (CTRN), through the coordinating center based at the University of… Read More »
Rare Disease Day Rare Talent Challenge
This year, to celebrate Rare Disease Day, taking place on Wednesday, February 28, we will be hosting a viral photo and video challenge! Share your rare talents and help us… Read More »