Co-founder and Former CEO Daniel Paul Perez to continue with the FSH Society as Chief Science Officer LEXINGTON, Massachusetts – William R. Lewis Sr. M.D., chairman of the Board of… Read More »
FSH Society Board of Directors Names Mark A. Stone as Next Chief Executive Officer
Award-winning author Lisa Reinicke author lends her support
Readers of FSH Watch may remember Katie Ruekert’s personal story about how she struggled to come to terms with her diagnosis of FSH muscular dystrophy, and how her journey eventually… Read More »
FSH Society awards over $600K for new research
The FSH Society has awarded grants totaling $616,467 to seven research projects submitted for the February 2017 grant cycle. This brings total research funding by the Society for 2017 to… Read More »
In memorium: Richard Lefebvre, former FSH Society Board member
Former FSH Society board member Dick “Hap” Lefebvre passed away this past Saturday at the age of 70 from complications of FSH muscular dystrophy. For those wishing to reach out… Read More »
¡El folleto “About FSHD” ya está disponible en español!
Estamos muy contentos de anunciar que About FSHD, nuestro folleto esencial para todos los pacientes, familias, proveedores de atención primaria y otros, ha sido traducido al español. Damos las gracias… Read More »