Former FSH Society board member Dick “Hap” Lefebvre passed away this past Saturday at the age of 70 from complications of FSH muscular dystrophy. For those wishing to reach out… Read More »
In memorium: Richard Lefebvre, former FSH Society Board member
¡El folleto “About FSHD” ya está disponible en español!
Estamos muy contentos de anunciar que About FSHD, nuestro folleto esencial para todos los pacientes, familias, proveedores de atención primaria y otros, ha sido traducido al español. Damos las gracias… Read More »
Hot off the press: FSH Watch
The latest issue of FSH Watch is here! Highlights: Clinical Trial Research Network receives major NIH award World FSHD Day 2017 FSHD Family Day Conference in Columbus, Ohio Bone health… Read More »
“About FSHD” brochure is now available in Chinese!
Thanks to our friend and fellow FSHD advocate in China, Ning Baisheng, our “About FSHD” brochure has been translated and adapted for readers in China. Baisheng says patients in China… Read More »
Relive Team FSHD Cycling’s Race Across America!
Check out this amazing video of Team FSHD Cycling’s epic race this summer. Huge thank you to Emily Pollock for creating this priceless documentary. Warning: Have a box of tissues… Read More »