Check out our brand-new Orange Slice Selfies video to find out how you can join in celebrating World FSHD Day coming up on June 20th! With the help of great… Read More »
Check out our Orange Slice Selfies Video!
FSH Society Talk Radio – A chat with Chris Carrino, voice of the Brooklyn Nets
Wednesday, May 31, 2017. 10:00 pm EST / 9:00 pm CST. LISTEN HERE! Chris is the voice of the NBA’s Brooklyn Nets and as founder of the Chris Carrino Foundation,… Read More »
Make an Impact This World FSHD Day With Our Orange Slice Selfie Campaign
The FSH Society is excited to celebrate the Second Annual World FSHD Day and join the global effort to raise awareness to FSHD this June 20th. To build upon last… Read More »
From our CEO, a call to FSHD researchers
Dear Research Colleagues, As you know, the FSH Society constantly encourages the National Institutes of Health (NIH) to increase the number of grants and the number of dollars it funds… Read More »
FY2016 Donor Impact Report is here!
When my mother, Carol, was diagnosed with facioscapulohumeral muscular dystrophy (FSHD) in the late 1950s, she was told she had only five years to live. As appalling as we find… Read More »