We have launched a new service for our members, an internet radio show that will feature guest interviews and live on-air Q&A with our listeners. Hosted by Tim Hollenback, the… Read More »
FSH Society Talk Radio launches first episode
FSHD patient survey results presented at MDA Conference
At the Muscular Dystrophy Association’s biennial scientific conference, held in Washington, DC, on March 19-22, 2017, researchers from Acceleron Pharma presented a poster about the most prominent symptoms and daily… Read More »
The FSH Society Spring Watch is out!
The FSH Society is pleased to announce their Watch Newsletter for Spring 2017. Featured in the Watch are articles about Highlights from the FSH Society’s 2016 International Research Conference (page 1)… Read More »
FSH Society Supporters Dr. Michael Kyba and Marge Brchan Share Their Story With FOX 9 Minneapolis
Over the weekend, supporters of the FSH Society Dr. Michael Kyba of the University of Minnesota and patient Marge Brchan shared their amazing story with Leah Beno of FOX 9… Read More »
Team FSHD Cycling eyes epic race in June 2017
by June Kinoshita During the month of June of this year, the FSHD community will enjoy the thrill of having one of its own lead an eight-person team in the… Read More »