Newly Formed Facioscapulohumeral Muscular Dystrophy Consortium Aims to Consolidate More than 13 Patient Registries in Effort to Accelerate Research on Rare Disease BOSTON – (February 22, 2017) – Today the… Read More »
Consensus Reached to Move Forward with Formation of International Global FSHD Patient Registry
New Source for FSH Muscular Dystrophy Family Cell Lines
Cell Lines to be made available through the NIGMS Human Genetic Cell Repository, sponsored by the National Institute of General Medical Sciences at Coriell Institute for Medical Research (From PRWeb)… Read More »
Download our medical alert card
If you ever find yourself in the emergency room, you want your medical care team to know about your status as a person with FSH muscular dystrophy. Our medical alert card, which… Read More »
Global FSHD Registry Workshop
International workshop in November reaches consensus on a global FSHD patient registry. If you are an individual with FSHD, or a family member, you may have been asked to join a… Read More »
Looking Back on a Year Full of Strength, Part 3 of 3
As we come up on the last days of 2016, we are taking one final look back on the incredible year it has been, and one last moment to recognize… Read More »