Our 2015-2016YTD Donor Impact Report is out! We urge you to read it to appreciate the incredible impact your support has had, and will continue to have into the future…. Read More »
2015-2016YTD Donor impact report. 25 years of transformation
2016 FSHD Patient Connect Conference
The FSH Society’s 2016 Patient Connect conference was held on Friday, November 11, (noon to 5:00PM) and Saturday, November 12, 2016 (9:00-5:00 PM) at the Westin Copley Place Hotel in Boston, Massachusetts…. Read More »
FSH Society receives its 9th 4-star Charity Navigator rating
We just received news that the FSH Society has earned its ninth consecutive 4-star Charity Navigator rating! We’re now in the top 1% of all U.S. charities! According to Michael… Read More »
Carden and Spencer Wyckoff Share Their Appalachian Adventure with WSB-TV Atlanta!
Last month, FSH Society Ambassadors Carden and Spencer Wyckoff hiked through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch… Read More »
FSH Society honors leaders in science and advocacy
On November 11, the FSH Society honored four distinguished researchers and community members at its inaugural CureFSHD National Gala in Boston, Mass. The event, hosted by WBUR’s Morning Edition Host… Read More »