The evening of the CureFSHD Gala on November 11, 2016, in Boston, Massachusetts, was one of those magical moments when we were overcome with gratitude for the generosity, courage, and… Read More »
Gratitude
FSH Society will keep an eye on Washington DC
The recent national election, bringing in a new Administration, raises questions and concerns about the future of laws and programs of interest to researchers, patients and caregivers dealing with FSHD…. Read More »
Holiday Notice
Please note that our office will be closed on the following dates: Thursday, November 24, 2016 Friday, November 25, 2016 Friday, December 2, 2016 Monday, December 26, 2016 Monday, January… Read More »
“Into the Light” – The story of the FSH Society
Produced for the FSH Society’s 25th anniversary, our new documentary tells the story of how the Society’s work has led to the discovery of the genetic cause of facioscapulohumeral muscular dystrophy… Read More »
Ghostly Gala posts an awesome trailer
Hot off the press! Our celebrity champion Max Adler has confirmed that he is attending. Comedian Wendy Liebman will host the evening. Get out your powdered wigs, unitards, and sparkle!… Read More »