The FSH Society’s 2016 Patient Connect conference was held on Friday, November 11, (noon to 5:00PM) and Saturday, November 12, 2016 (9:00-5:00 PM) at the Westin Copley Place Hotel in Boston, Massachusetts…. Read More »
2016 FSHD Patient Connect Conference
FSH Society receives its 9th 4-star Charity Navigator rating
We just received news that the FSH Society has earned its ninth consecutive 4-star Charity Navigator rating! We’re now in the top 1% of all U.S. charities! According to Michael… Read More »
Carden and Spencer Wyckoff Share Their Appalachian Adventure with WSB-TV Atlanta!
Last month, FSH Society Ambassadors Carden and Spencer Wyckoff hiked through the Georgia portion of the Appalachian Trail to raise awareness and funds to cure FSHD. You can now watch… Read More »
FSH Society honors leaders in science and advocacy
On November 11, the FSH Society honored four distinguished researchers and community members at its inaugural CureFSHD National Gala in Boston, Mass. The event, hosted by WBUR’s Morning Edition Host… Read More »
Gratitude
The evening of the CureFSHD Gala on November 11, 2016, in Boston, Massachusetts, was one of those magical moments when we were overcome with gratitude for the generosity, courage, and… Read More »