Beth Johnston has joined the FSH Society in August of 2016 as Development Officer. She will work with the Executive Director and the leadership team to create, execute and grow the… Read More »
New member of our team
Help put FSHD on TV!
FSH Society public service announcements are available for television broadcast, but we need your help to get stations to actually air them. When stations hear from local viewers, they can be… Read More »
FSH Watch 2016 Issue 1 is out!
Hot off the press, our current issue of FSH Watch keeps you up to date on important advances in research and medical care, as well as news about your Society, regional… Read More »
Children’s Book Author Belinda Miller Supports the Society through Donations
Belinda Miller is a successful children’s book author who was diagnosed with facioscapulohumeral muscular dystrophy when she was 22 years old. Her diagnosis has not stopped her from doing the one… Read More »
FSH Society Awards Grant to Establish Clinical Trial Research Network for FSHD
(PRWEB) JUNE 14, 2016 The FSH Society, a nonprofit, patient-driven organization that supports research and education for individuals with facioscapulohumeral muscular dystrophy (FSHD) and their families, today announced that it… Read More »