The FSH Society Board welcomes two new members, who were elected at the May 2016 Board meeting. They bring considerable business, financial, governance, and marketing knowledge with them, along with… Read More »
Meet our newest Board of Directors members
FSH Society commits over $1.38 million to research in 2016
Grants approved from February 2016 cycle set new record. The FSH Society has committed $648,774 in funding to five research projects that aim to break new ground in the search… Read More »
2016 FSHD Connect Conference
Register at the following links: Research Connect Patient Connect CureFSHD Gala This year, for the first time, we have combined our two signature meetings into FSHD Connect, a single, three-day… Read More »
New member of our team
Beth Johnston has joined the FSH Society in August of 2016 as Development Officer. She will work with the Executive Director and the leadership team to create, execute and grow the… Read More »
Help put FSHD on TV!
FSH Society public service announcements are available for television broadcast, but we need your help to get stations to actually air them. When stations hear from local viewers, they can be… Read More »