Tune in on Wednesday, June 8, for American Ninja Warrior on NBC! The episode airing at 8:00pm ET / 7:00pm CT focuses on the popular show’s Atlanta trials and features Spencer… Read More »
American Ninja Warrior features our Ambassador
Raising awareness on highway billboards
The state of Massachusetts has a program through which operators of electronic billboards must donate some space to nonprofits. We were able to obtain space by partnering with the Massachusetts… Read More »
The Power of 25 – Our Spring Challenge Campaign
This spring, we are launching our most ambitious annual campaign ever to mark this, our 25th year since Daniel Perez and Steve Jacobsen founded the FSH Society. Our goal: to… Read More »
Third Annual Songs in the Key of Steven Blier
June 24, 2016, 6:00 PM – REGISTER NOW! Grace Cathedral, San Francisco Please join the extraordinary pianist Steven Blier and baritone Theo Hoffman for a transcendent evening in one of San… Read More »
In Dallas, many meet another with FSHD for the first time
Ever since joining the FSH Society’s Board of Directors, Abilene-resident Wendy Shack has been hoping to gather the region’s FSHD patients and families for a meeting. Last Saturday, she saw the… Read More »