Ever since joining the FSH Society’s Board of Directors, Abilene-resident Wendy Shack has been hoping to gather the region’s FSHD patients and families for a meeting. Last Saturday, she saw the… Read More »
In Dallas, many meet another with FSHD for the first time
Good times! TD Garden Tournament
Our first-ever basketball tournament, at Boston’s legendary TD Garden–home of the Boston Celtics–was a rousing success. Teams from Acceleron Pharma, SHIFT Communications, O’Connor Drew, Mouse Specifics, Social Sports Boston and… Read More »
FSH Society submits testimony to U.S. Congress
FSH Society President & CEO Daniel Perez has submitted his annual testimony to the U.S. House Appropriations Committee, Subcommittee on Labor, Health and Human Services, Education and Related Agencies (LHHSE)…. Read More »
Publication highlights release of muscular dystrophy action plan
The Muscular Dystrophy Coordinating Committee (MDCC), a congressionally authorized group of representatives from federal agencies and patient advocates, recently released an updated version of its Action Plan for the Muscular… Read More »
NIH funding for Facioscapulohumeral muscular dystrophy sets new record
We have some good news to share on National Institutes of Health funding for FSHD. As part of the FSH Society’s committee work in Washington, DC, we recently received FY2015… Read More »