The FSH Society Board of Directors has elected two new members at its February 2016 meeting. The newly elected directors, George Pollock Jr and Neil Solomon, MD, bring extensive experience… Read More »
FSH Society elects new Board members
Staples Grant to Support Scholarship
Did you hear? The FSH Society has been awarded a grant by Staples Foundation. We plan to use the donation to support public awareness and youth education about FSHD, such… Read More »
In Celebration of 25 Years: Thank You
This year, we are proud to say that the FSH Society is celebrating its 25th anniversary. For a quarter century, we have had the honor and the privilege of helping… Read More »
FSH Society attending FSH Friends research summit
FSH Society executive director June Kinoshita will be attending the 2016 FSH Friends Research Summit in Portland, Oregon, this February 29-March 1, timed to mark Rare Disease Day. The summit… Read More »
Thank you for helping us exceed our year-end challenge!
At the end of 2015, our Board of Directors pledged gifts totaling $384,805 and challenged FSH Society members and friends to match it. We’re delighted to announce that not only… Read More »