At the end of 2015, our Board of Directors pledged gifts totaling $384,805 and challenged FSH Society members and friends to match it. We’re delighted to announce that not only… Read More »
Thank you for helping us exceed our year-end challenge!
Scholarship rewards students for spreading muscular dystrophy awareness
The FSH Society has teamed up with the Jain Foundation and 7 other patient advocacy organizations to fund scholarships to college students who teach others about hereditary muscle-weakening diseases. These… Read More »
Hot off the press! FSH Watch Fall 2015 issue
This October we had our first-ever gala in Los Angeles, an incredibly fun Halloween costume ball aptly named “A Ghostly Gala to Vanish FSHD.” There, June spoke of the importance… Read More »
A time to express gratitude
Thanksgiving is that time of year when we pause to appreciate the blessings in our lives. There’s a good reason Thanksgiving is everyone’s favorite holiday, and it’s not just the… Read More »
Special Black Friday Cyber Monday offer!
Be first online to take advantage of this special sale from Anson Calder, a New York City-based travel accessories company. Anson Calder’s finely crafted, luxury goods were designed by and… Read More »