Want to see a shirt that will knock your socks off? In addition to style, for every shirt or sweatshirt sold, 100% of the profits goes back to the FSH… Read More »
Become involved with our FSHD Be Strong Campaign!
International facioscapulohumeral muscular dystrophy research conference in Boston
The FSH Society’s 2015 Facioscapulohumeral Muscular Dystrophy (FSHD) International Research Consortium and Planning Meeting will convene in Boston this year, on October 5-6. This meeting is the largest annual forum… Read More »
National Pro Grid League supports the FSH Society
The National Pro Grid League (NPGL) announced today that it has selected the FSH Society as a beneficiary of its charity program. The men and women athletes in the NPGL,… Read More »
Kristin Duquette speaks about the 25th Anniversary of the Americans with Disabilities Act with Huffington Post Live
The Huffington Post hosted a live discussion around the 25th anniversary of the Americans With Disabilities Act. Our very own Kristin Duquette, a decorated athlete and activist, participated in the… Read More »
Hot off the press: FSHD care guideline
Evidence-based, if incomplete, new guideline is a major step forward. All too often, FSHD patients encounter doctors whose knowledge of the disease seems to be gleaned from dusty textbooks. A… Read More »