We have some good news to share. Last night members of SHIFT Communications, our pro bono PR/Marketing partner, attended the annual Publicity Club of New England’s Bell Ringer awards. The Publicity… Read More »
#FSHDSelfies campaign wins award
Honorary Board’s Kelli O’Hara nabs Tony!
Twitter erupted in a frenzy of virtual applause and “it’s about time” tweets when Kelli O’Hara won the 2015 Tony Award for Best Actress in a Musical last night. It… Read More »
Clinical Trial Readiness for Facioscapulohumeral muscular dystrophy
The FSH Society is co-funding the second FSHD Trial Preparedness Workshop. The Workshop, held from May 29-30, 2015, at the University of Rochester Medical Center in Rochester, New York, will convene… Read More »
The #CureFSHD campaign takes to the Boston transit system
As part of its ongoing awareness campaign, #CureFSHD, the FSH Society has released five distinctive public service ads that will be displayed in 250 subways trains and buses across Boston… Read More »
FSH Society funds genome editing project
Genome Editing, or the ability to make designer changes to the human genome, was once firmly in the realm of science fiction, but recent discoveries have changed that. Although it… Read More »