Living with and fighting against a deadly disease By Jessica Bartlett, Boston Business Journal Dan Perez, President and CEO of the FSH Society, has testified nearly 40 times before Congressional… Read More »
Interview with Daniel Perez
Senator Elizabeth Warren addresses FSH Society meeting
FSHD Connect Unites Patients, Doctors and Researchers to Explore New Insights on Rare Disease Boston, MA (August 18, 2014) (PRWEB) August 18, 2014 The FSH Society, the Massachusetts-based charitable non-profit… Read More »
2014 FSHD Connect attracts over 200 people
2014 FSHD Connect, the FSH Society’s biennial international conference of patients, families, researchers and clinicians, was held in Boston on August 16-17th. Over 200 people attended, the largest such gathering to… Read More »
FSH Society’s International Meeting to Bring Together Patients & Researchers From Around the World to Explore New Insights on Rare Disease
The FSH Society, the Massachusetts-based charitable foundation that has transformed the science of a little-known disease, facioscapulohumeral muscular dystrophy (FSHD), today announced its Biennial International Network Meeting. The meeting will… Read More »
FSH Watch Winter 2012
Highlights include: FSH Society Annual Donor Report Grant awards for August 2011 FSH Society 2012 International Patient/Researcher Network Meeting Still Walking by Bill Moss, an “inspirational, moving, blunt and at… Read More »