selfie noun, informal – a photograph that one has taken of oneself, typically one taken with a smartphone or webcam and uploaded to a social media website – Oxford Dictionary Our national… Read More »
#FSHDselfies Shoot a Selfie, Raise Awareness
Opera legend Frederica von Stade to sing for FSH Society
From PRWeb On Thursday July 24, 2014, the FSH Society will hold a very special benefit concert at Yoshi’s Jazz Club in San Francisco with opera’s legendary singer, Frederica von Stade, who… Read More »
FSH Watch Spring 2014
You can read and download it by clicking here. Highlights of this issue include the following: Details about FSHD Connect, our biennial meeting that brings together patients and families with… Read More »
Michelle Mackay and Retired Kellogg’s CEO David Mackay Host Second Annual FSH Society Fundraiser
From PRWeb Couple Builds upon Success of Last Year’s Event to Raise Awareness of Little-Known Disease at Lakeside Michigan Event Gull Lake, Michigan – May 25, 2014 – After last… Read More »
Welcome to our Celebrity Board
FSH Society Announces Honorary Board Committed to Raising FSHD Awareness Distinguished celebrities help increase visibility of rare incurable disease (From PRWeb) The FSH Society, the Massachusetts-based non-profit organization that has transformed… Read More »