2012 Facioscapulohumeral Muscular Dystrophy (FSHD) International Research Consortium Meeting for FSHD research professionals held in San Francisco was a success! Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting… Read More »
Progress in FSHD Muscular Dystrophy Research Hailed at International Meeting
Celebrities Come Out for FSH Muscular Dystrophy
Los Angeles, CA / October 03, 2012 Fans of the Fox TV hit series “Glee” know [Max Adleras the actor behind “Dave Karofsky”, the closeted football jock who tormented Kurt Hummel but… Read More »
Musical Stars Shine for FSH Muscular Dystrophy
New York, NY / September 25, 2012 For years, Steven Blier has occupied the limelight as a celebrated pianist and advocate for the art song. He has toured with opera superstars like… Read More »
A Festive Evening of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000
A Festive Evening of Song, at the New York Botanical Garden, Monday, September 24, raised nearly $250,000 for FSHD research More. Many thanks to Steven Blier, Kelli O’Hara, Judy Seslowe,… Read More »
FSH Watch Summer/Fall 2012
Highlights include: Introduction of June Kinoshita, the new Executive Director of the FSHD Society. She describes a plan to raise visibility of FSH muscular dystrophy. Atlanta Patient-Researcher meeting. The state… Read More »