Anyone employed by the federal government can make donations to the FSH Society through the Combined Federal Campaign. Please encourage family and friends who qualify to include the FSH Society… Read More »
It’s enrollment time for Combined Federal Campaign
Announcing our St. Louis chapter
We are proud to announce our newest chapter of the FSH Society, in St. Louis, MO. Big thank you to Marsha Sverdrup for stepping up as our chapter director. We… Read More »
Listen up! Columbus TV news features our Walk leader
Check out this audio from an interview with Sue Aumiller, director of our Columbus Ohio chapter, with Mark Blazor from Columbus’s top local station, 610-WTVN. Mark read the Columbus Dispatch’s… Read More »
Kansas City FSHD Family Day registration now open
You can now register for the FSHD Family Day Conference in Kansas City, taking place on November 10. Registration is free but required so that we have accurate numbers of… Read More »
Why I made the FSH Society a beneficiary in my will
Because if not us, then who? by Deborah Schwartz, New York City I was clinically diagnosed with FSHD two years before the FSH Society came into being. Mine is a spontaneous… Read More »