We’re excited to announce that YOU could join Debby Ryan for a self-care day in Los Angeles! Flights and hotel are included, plus donations to win benefit our work here… Read More »
Win a day of self-care with Hollywood star Debby Ryan!
We bring people together to fight FSH muscular dystrophy
The FSH Society connects patients like Katie Ruekert to a community of support so no one has to face this disease alone. We also work closely with thought leaders like… Read More »
Blazing a Trail to the Future
You inspire me! You have faithfully supported, worked, and engaged your network and loved ones to join our quest for treatments and a cure for FSHD. I want to acknowledge… Read More »
An undeniable sense of optimism
In this interview, Dr. Jeffery Statland of the University of Kansas Medical Center explains how FSH Society funding seeded the creation of the seven-site Clinical Trial Research Network (CTRN), which… Read More »
A comedian’s worst nightmare
Watch what happens with this famous Dutch comedian performs before an audience of people with facioscapulohumeral muscular dystrophy. Did you notice confidence and determination of these patients and families, boldly… Read More »