Join us on Tuesday, November 28th, 2017 as we participate in the 6th annual #GivingTuesday! #GivingTuesday is a global day of giving fueled by social media and collaboration following the widely… Read More »
#GivingTuesday 2017 is Just Around the Corner!
With a Sense of Urgency
When Katie Ruekert reached out to the FSH Society, she discovered that by connecting with others with facioscapulohumeral muscular dystrophy (FSHD), she gained a new sense of purpose. Her husband… Read More »
Not Your Mother’s Yarn
FSH member Kathy Senecal will be fundraising for the FSH Society in the coming months at four different craft fairs through her business, Not Your Mother’s Yarn. 100% of the… Read More »
FSHD Family Day Conference in Los Angeles
The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for… Read More »
2017 Los Angeles Festive Evening Fundraiser
Dear Friends of the Ghostly Gala to Vanish FSHD, Thanks to your enthusiastic and generous support, the Ghostly Gala has quickly become a beloved Halloween event, whose impact is being… Read More »