UPDATED! Thank you to everyone who donated to Michelle’s Forget Me Knot fundraising campaign. We didn’t quite reach our $50,000 goal, so Michelle has extended the deadline to donate to September 15th!!… Read More »
Forget Me Knot Fundraiser, Extended until September 15th!!
Ohio FSHD Family Day Conference
Strengthening our network in the Midwest The FSHD Family Day Conference, hosted by Nationwide Children’s Hospital and the FSH Society on June 11, 2017, drew about 70 patients, families, researchers,… Read More »
Our San Francisco Concert and Patient Meeting is right around the corner!
Join us for our annual San Francisco Concert and Conference, given in memory of Joyce Hakansson. Don’t miss our FSHD Family Day Conference and Songs in the Key of Steven Blier benefit concert on… Read More »
Make an Impact This World FSHD Day With Our Orange Slice Selfie Campaign
The FSH Society is excited to celebrate the Second Annual World FSHD Day and join the global effort to raise awareness to FSHD this June 20th. To build upon last… Read More »
World FSHD T-shirts are here!
World FSHD Day is right around the corner and we know you want to be ready to raise awareness. The Society’s World FSHD Day t-shirts are here in the official… Read More »