by June Kinoshita During the month of June of this year, the FSHD community will enjoy the thrill of having one of its own lead an eight-person team in the… Read More »
Team FSHD Cycling eyes epic race in June 2017
Upcoming Denver FSHers Meeting: March 25th, 2017
Written by Beth Johnston, Development Officer at the FSH Society When my husband, Jeff, was diagnosed with FSHD in 2001 (after years of wondering what was going on with his… Read More »
Sacramento meeting report
About 12 members of the Sacramento FSH Society Support Group met at Mimi’s Café on February 8th. We had a new attendee who moved from Monterey and had never met… Read More »
Team FSHD Cycling: Race Across America
Team FSHD Cycling, formed by George Pollock Jr., will participate in the Open Division as an 8 person team in this year’s Race Across America, one of the most respected and longest running ultra-endurance… Read More »
2016 FSHD Patient Connect Conference
The FSH Society’s 2016 Patient Connect conference was held on Friday, November 11, (noon to 5:00PM) and Saturday, November 12, 2016 (9:00-5:00 PM) at the Westin Copley Place Hotel in Boston, Massachusetts…. Read More »