#GivingTuesday is a global day of giving fueled by the power of social media and collaboration. This year, it falls on December 3, and we are marking the day by… Read More »
#GivingTuesday Telethon
Dan Levy’s FSHD family story
If you’ve been on our social media channels, you may have seen our posts about actor Dan Levy’s Omaze campaign to raise funds for the FSHD Society but you may… Read More »
The 2019 Year-End Report
This year, the FSHD Society – empowered by you – launched an aggressive plan to accelerate therapeutic development for FSHD. We brought together pharmaceutical companies, researchers, government agencies, and families… Read More »
Los Angeles Walk & Roll to Cure FSHD makes the news
Our inaugural Los Angeles Walk & Roll to Cure FSHD made the local TV news in Torrance, CA, this week! The event was organized by the Los Angeles chapter of… Read More »
Meet Dan Levy of Schitt’s Creek!
Big news! We’ve teamed up with the online fundraising platform Omaze to give you the chance to meet Dan Levy, of Schitt’s Creek. Dan is the co-creator and star of… Read More »