“For all my friends and family out there who haven’t heard, I have recently been diagnosed with FSHD which is a form of muscular dystrophy. It is a progressive disease… Read More »
Chicagoland chapter members invite you to their Walk & Roll to Cure FSHD!
Cure FSHD? Now is the time!
We can do more than simply aspire to a treatment in some undefined future. We are confident that, with your continued support, we will have treatments for FSH muscular dystrophy… Read More »
Peace Joy Gratitude
You’ve made a difference and we are grateful As the year draws to a close, all of us at the FSH Society wish you Happy Holidays and thank you for… Read More »
An urgent call to action
This year-end webinar by FSHD Society CEO Mark Stone is a must watch. He lays out our detailed strategy that will get treatments for FSHD to our families by the… Read More »
New England chapter meeting talks
The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted… Read More »