Analysis of FSHD registry data overturns prior ideas about genetic and gender factors by Natalie Katz, MD, University of Rochester Facioscapulohumeral muscular dystrophy is a highly variable disease. While we… Read More »
Artificial intelligence reveals some surprises
FSHD Masterclass for physicians is available on-demand
100% of doctors who took the live version said they would recommend this course to their colleagues. The FSHD Society’s highly rated CME-accredited masterclass on facioscapulohumeral muscular dystrophy (FSHD) is… Read More »
Giorgio Tasca wins 2021 Young Investigator Award
The 2021 FSHD Society Young Investigator Award at the International Research Congress was awarded to Giorgio Tasca, MD PhD, a neurologist at the Fondazione Policlinico Universitario in Rome, Italy. Dr…. Read More »
The Job Talk
Lynn Stevens from Goodwill Industries of Northern Louisiana gave a superb webinar sharing much valuable information for anyone with a disability about resources to help people find and keep gainful… Read More »
Pivot
by Larry Chase Those of us who live with FSHD must “pivot” our world constantly. Pivot—the buzz word for what we all are going through and continue to experience, just… Read More »