The city’s famed football club engages, inspires, and empowers this FSHD family Last month, father and daughter Michael and Alexa Penwell had an incredible experience in Leicester City, England. They… Read More »
An Unforgettable Experience at Leicester City’s Disability Matters Matchday
New frontiers in muscle regeneration for FSHD
Once seen as a long shot, now more companies are looking at strategies to regrow muscles by Jamshid Arjomand, PhD, Chief Science Officer Over the past few years, there has… Read More »
What to do in a crisis
Mental health crises are prevalent in our community. Help is out there A diagnosis of FSHD poses life-long challenges. Individuals live with an undercurrent of anxiety about how their symptoms… Read More »
Your practical guide to clinical trials
by Amanda Hill, FSHD Society How do I find clinical trials that are recruiting participants? Our website is one of the best ways to find clinical trials that are recruiting…. Read More »
The challenges of the new era
What can you do to help? When we say that we are embarking on a new era in clinical trials, what do we mean? After all, we have seen previous… Read More »