by Amanda Hill, FSHD Society How do I find clinical trials that are recruiting participants? Our website is one of the best ways to find clinical trials that are recruiting…. Read More »
Your practical guide to clinical trials
The challenges of the new era
What can you do to help? When we say that we are embarking on a new era in clinical trials, what do we mean? After all, we have seen previous… Read More »
European FSHD patients speak out
To coincide with World Rare Disease Day FSHD Patients across Europe say what they want from clinical trials Announcement by FSHD Europe FSHD Europe is pleased to publish the Lay… Read More »
Find your rope team
When the going gets tough, your team will hold you up by Leigh Reynolds, FSHD Society Army Command Sgt. Maj. Gretchen Evans earned the highest rank an enlisted soldier can… Read More »
Avidity gets orphan drug designation
Avidity Biosciences announced this week that it had received FDA Orphan Drug Designation for its experimental FSHD treatment, called AOC 1020. This does NOT mean the drug is now available… Read More »