This webinar discusses anesthetic considerations for patients with FSHD, emphasizing that each anesthetic plan is tailored to the individual patient and procedure. The speaker is Bruna Castro de Oliveira, a… Read More »
Anesthesia in surgery for people with FSHD
Rebounding exercises
by June Kinoshita, FSHD Society At a recent Feeling Fit Zoom gathering, Cheryl Clulow, who had logged in from her home in Cape Town, South Africa, mentioned that she has… Read More »
2025 Volunteer Leadership Summit
Powered by love and resilience by Beth Johnston, FSHD Society “It’s not just about giving back—it’s about growing, having fun, and being part of something truly impactful.” – anonymous “Seeing… Read More »
You’re invited! Mobility impact study
Nils Hakansson (he also goes by Alex) is a professor in the College of Engineering at Wichita State University. He has FSHD and is working on projects to help improve… Read More »
Disability, Wildfire & Disaster Resources
The California Wildfires have disrupted life and displaced thousands. Natural disasters and other emergencies greatly impact individuals using power chairs/mobility aides and those who might need assistance to evacuate safely. … Read More »