Finding a way around all obstacles by June Kinoshita, FSHD Society One lesson Michelle Mellion, MD, absorbed from seeing patients at a Muscular Dystrophy Association (MDA) neuromuscular clinic is that… Read More »
Meet Michelle Mellion, MD, our medical advisor
Avidity begins Cohort C enrollment in FORTITUDE trial
Avidity begins Cohort C enrollment in FORTITUDE trial Avidity Biosciences has begun enrollment of Cohort C of the Phase 1/2 FORTITUDE™ clinical trial. Below is Avidity’s letter to the FSHD… Read More »
Fall vaccine guide
Via Ranae Beeker, RN, here’s a clear and concise guide to recommended vaccines, updated for the fall of 2024. For people with neuromuscular conditions, this is especially important because: Falling… Read More »
Why put off getting hearing aids?
They’re now more affordable and available by Richard Holmes, Sandwich, Massachusetts If you’re straining to hear what people say, or find yourself cranking up the volume on your TV to… Read More »
Muscle loss with Ozempic® and similar drugs
What’s the risk to people with muscular dystrophy? by Rich Holmes, Sandwich, Massachusetts Heard about Ozempic, Mounjaro®, and related drugs and wonder if one might help you lose weight? That’s… Read More »