We have released a new version of our Medic Alert Card, with the gracious assistance of Ranae Beeker, RN, Helen Cave, and Dr. Joshura Benditt, a pulmonologist at the University… Read More »
Updated medic alert card
Nerve mobility and pain
Our May Feeling Fit Zoom group featured Arielle Levy, a physical therapist from Re+Active Physical Therapy founded by Julie Hershberg (a legend in the FSHD community). Following the introductory information… Read More »
Distended belly with FSHD: A surgical reconstruction
…and perhaps refinements yet to be discovered. A first step. by Rick Whitehead, Knoxville, Tennessee I promoted using a double compression abdominal belt for years but was always looking for… Read More »
Marijuana and CBD
The Young Adults Zoom group hosted a session last night (March 18) with guests Claire Szabo-Casella and Lou Casella. They shared their experiences using cannabis-based products to address a variety… Read More »
Statins (cholesterol-lowering drugs) and muscular dystrophy
Weighing risks and benefits We are often asked about whether people with FSHD can safely take statins. Statins are the most widely prescribed drug in the world and are used… Read More »