Here are the slides and videos from the Bay Area Family Day conference, held at the Li Ka Shing Center, Stanford Medical School, on Sunday, April 28, 2019. Click on… Read More »
Bay Area Family Day Video and Slides
Stance-control brace webinar [VIDEO]
Here is the recording of our June 8th webinar with Abbey Downing, a certified prosthetist/orthotist from the Hanger Clinic in Wethersfield, CT. Ms. Downing has worked with Kathy Senecal, a… Read More »
Webinar video: FSHD 101
In our webinar from May 22, Samantha LoRusso, MD, provides a concise introduction to the basic facts about FSH muscular dystrophy and answers dozens of questions from our live webinar… Read More »
Medicare coverage for ongoing maintenance physical therapy
Article adapted with permission from Melissa Fox, PT, DPT, University of Virginia Health System. There are times when a short course of physical therapy (PT) can meet your current needs,… Read More »
Surgery fixed my eye problems
by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully,… Read More »