Many people with FSHD do not see a neuromuscular doctor regularly. Told that there is no treatment, they wonder, “What’s the point?” In this video, Jeffrey Statland MD explains why… Read More »
Why have an annual check-up?
The Physiatrist’s role in managing FSH muscular dystrophy
Many of us have never heard of this field of medicine, but physiatrists are a very important resource for FSHD patients. In this video, Dr. Susan Keeshin of Shirley Ryan… Read More »
Tips for getting your insurer to approve genetic testing
We hear often from patients and families who are having difficulty getting an insurer to pay for genetic testing of FSHD. It is our impression that the payors are denying… Read More »
Duchenne/Becker and FSH Muscular Dystrophies Receive ICD-10 Codes
Parent Project Muscular Dystrophy, FSH Society Lead Effort to Obtain Critical Diagnostic Classification Standard HACKENSACK, N.J., Dec. 7, 2017 /PRNewswire-USNewswire/ — Parent Project Muscular Dystrophy (PPMD), along with collaborators the… Read More »
FSHD Family Day Conference in Los Angeles
The FSH Society’s Los Angeles FSHD Family Conference will be held on October 21, 2018, at Santa Monica College’s Bundy Campus. Join patients, families, and top researchers and clinicians for… Read More »