Evidence-based, if incomplete, new guideline is a major step forward. All too often, FSHD patients encounter doctors whose knowledge of the disease seems to be gleaned from dusty textbooks. A… Read More »
Hot off the press: FSHD care guideline
First-Ever FSHD Evidence-based Care Guideline Published by the American Academy of Neurology
From PRWeb Contact Information: Rosie Hale 617-779-1893 FSHSociety@shiftcomm.com Guideline is a landmark step forward for the diagnosis; comes as a result of FSH Society’s advocacy efforts over the past 20… Read More »
Bone health for FSHD patients
Carla Grosmann, MD, of the Kennedy Krieger Institute and University of California San Diego gave this talk about bone health at the FSH Society’s Mid-Atlantic patient network meeting on June… Read More »
Bone Health in FSHD–What do I need to know?
Special talk by Dr. Carla Grosmann from the Kennedy Krieger Institute Mid-Atlantic Patient Meeting Saturday, May 2, 2015. Noon-3:00 PM Will be live streamed over the FSH Society’s YouTube channel. Bone… Read More »
FSHD Connect conference slides are here!
Here are the slide decks from the 2014 FSHD Connect conference. We are still missing a few and are working to complete the collection. Alexandra Belayew: Several ways to go… Read More »