In December, our Women on Wellness Zoom group hosted Loralei Thornberg, MD, an ob/gyn at the University of Rochester. She is a rock star! She addressed issues in women’s health… Read More »
Women’s health with Dr. Loralei Thornberg
Clinical care vs. clinical research
Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard… Read More »
Treatments for FSHD: A broader view
There are already many effective interventions by Nicol Voermans, MD PhD, Radboud University Medical Center We hear that currently there is “no cure for FSHD,” but this does not mean… Read More »
Fall vaccine guide
Via Ranae Beeker, RN, here’s a clear and concise guide to recommended vaccines for the fall of 2023. For people with neuromuscular conditions, this is especially important because: Falling severely… Read More »
Eye Care Tips and Tricks for FSHD
by Helen Cave and the Women on Wellness group Dry eyes, also known as Ocular Surface Disease (OSD), is a common issue with many in the FSHD community. Symptoms are… Read More »