Know the difference by Amanda Hill, FSHD Society In your journey with FSHD, you’ve probably heard about the importance of seeing your doctor regularly. You also most likely have heard… Read More »
Clinical care vs. clinical research
Treatments for FSHD: A broader view
There are already many effective interventions by Nicol Voermans, MD PhD, Radboud University Medical Center We hear that currently there is “no cure for FSHD,” but this does not mean… Read More »
Eye Care Tips and Tricks for FSHD
by Helen Cave and the Women on Wellness group Dry eyes, also known as Ocular Surface Disease (OSD), is a common issue with many in the FSHD community. Symptoms are… Read More »
Adventures with a robotic leg brace
Stumble control technology reduces falls by 80 percent by Kathy Senecal, New England chapter co-leader It can be difficult to find the right adaptive equipment we need to help us… Read More »
Managing Fatigue
Our May Women on Wellness group discussion focused on a topic that is always a big concern, fatigue. This is a group of women who meet monthly on Zoom and… Read More »