As communities everywhere take steps to reduce transmission of COVID-19, we would like to share some information provided by our panel of medical advisors. For most individuals with FSHD, the… Read More »
FSHD and COVID-19
FAQs about genetic testing for FSHD
Julie Cohen, MSc, genetic counselor Julie Cohen, ScM, genetic counselor in the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute in Baltimore, Maryland, answers some commonly asked questions…. Read More »
Tax advantages from ABLE accounts
You may not even know you are eligible for these By Chris Stenmon, CPA, Braintree, Massachusetts Some consider this the most significant federal legislation for disabled individuals since President George… Read More »
CBD and medical marijuana [VIDEO]
Here are the slides and the recording from our webinar with Jennifer Bernstein on CBD and medical marijuana. With the spread of legalized medical marijuana and the passage of the… Read More »
NAD+ supplementation may help aging muscle
Could it be helpful for FSHD? BY AMANDA HILL, HIGHLANDS RANCH, COLORADO In the current absence of a treatment for FSHD, many patients experiment with a variety of lifestyle or… Read More »