by Helen Cave and the Women on Wellness group Dry eyes, also known as Ocular Surface Disease (OSD), is a common issue with many in the FSHD community. Symptoms are… Read More »
Eye Care Tips and Tricks for FSHD
Challenging the narrative: new film stars actor with FSHD
Good Bad Things is unlike any film you’ve ever seen by Erin Saxon, FSHD Society Good Bad Things is almost here! Last August, we shared updates on the project, and… Read More »
Falling backwards and what to do about it
From the Women on Wellness group At our May meeting, one member shared a great question: Has anyone had experience with falling backwards due to their lordosis? She didn’t feel… Read More »
True Cost of FSHD survey
Preliminary findings from our survey to understand the economic impact of FSHD by June Kinoshita, FSHD Society As a growing number of drugs enter clinical trials for FSHD, a question… Read More »
Walkers and Wheelchairs 101
Not every person with FSHD will need a mobility device, but many will at some point. The many designs and brands on the market can be daunting.