Preliminary findings from our survey to understand the economic impact of FSHD by June Kinoshita, FSHD Society As a growing number of drugs enter clinical trials for FSHD, a question… Read More »
True Cost of FSHD survey
Walkers and Wheelchairs 101
Not every person with FSHD will need a mobility device, but many will at some point. The many designs and brands on the market can be daunting.
Adventures with a robotic leg brace
Stumble control technology reduces falls by 80 percent by Kathy Senecal, New England chapter co-leader It can be difficult to find the right adaptive equipment we need to help us… Read More »
Managing Fatigue
Our May Women on Wellness group discussion focused on a topic that is always a big concern, fatigue. This is a group of women who meet monthly on Zoom and… Read More »
Raising our voice to raise our seats!
Medicare will now cover elevating power wheelchair seats by Ranae Beeker, RN Margaret Mead opined: “Never doubt that a small group of thoughtful, committed individuals can change the world. In fact, it’s… Read More »