by Peter Blackburn, South Africa FSHD group I have two of the Ottobock 5055 Acro Comfort braces. These are joined at the back with velcro tape (my personal touch to… Read More »
Life hacks: Braces for shoulder stabilization
Overcoming separateness
by Haviva Ner-David, Kibbutz Hannaton, Israel WHEN I WAS diagnosed, aside from recommending swimming, the doctor told me and my mother there was an organization I could join called the… Read More »
Let’s start a movement!
How I got my local hospital to make accommodations for me by Diane Pappas, Gloucester, Massachusetts You don’t realize there is a problem with something until you experience it yourself. … Read More »
Women on Wellness – Activities of daily living
by Ranae Beeker, RN The Women on Wellness (WOW) group, a group of women who personally share the challenges of FSHD meets on the first Wednesday of the month (2P… Read More »
Shoulder dyskinesia in FSHD
Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result… Read More »