Actors Max Adler and Danny Kurtzman team up for Good Bad Things Long-time FSHD Society champion, actor Max Adler, shared some exciting news with us that he has joined the… Read More »
New movie will feature man with FSHD
Changing mindset about assistive technologies
Emma Weatherley, executive director of Australia’s FSHD Global Research Foundation, has a refreshingly positive outlook on assistive devices. Instead of seeing the need to use a brace or wheelchair as… Read More »
A long journey but worth it
Face-to-face meetings add an extra layer of feelings and motivation by Ricardo Gerpe, FSHD Spain I had decided to go to Orlando for the FSHD Connect conference although due to… Read More »
Design to thrive
https://www.youtube.com/watch?v=noGX27Vz2eQ Jane Nemke shares how she applied universal design principles to renovate her condominium so that it was easier for her to live in as her FSHD symptoms progressed. Her… Read More »
June 20 is World FSHD Day 2022
A global celebration to raise awareness of FSH muscular dystrophy Are you tired of getting blank stares when you explain that you or a loved one have facioscapulohumeral muscular dystrophy?… Read More »