A global celebration to raise awareness of FSH muscular dystrophy Are you tired of getting blank stares when you explain that you or a loved one have facioscapulohumeral muscular dystrophy?… Read More »
June 20 is World FSHD Day 2022
About ankle-foot orthoses (AFOs)
Did you know we have an active group of international FSHD advocacy leaders, the World FSHD Alliance? We meet every three months to discuss global strategies. The members bring… Read More »
A delicate matter for female travelers with FSHD
Tips and tricks for managing urinary incontinence Editor’s note: This is a summary of the May Women on Wellness Zoom meeting. The members met to discuss their concerns and solutions… Read More »
Pain management in FSHD
The science and psychology of managing chronic pain Chronic pain is one of the more difficult aspects of living with FSHD, and also one of the most challenging to… Read More »
Life hacks: Braces for shoulder stabilization
by Peter Blackburn, South Africa FSHD group I have two of the Ottobock 5055 Acro Comfort braces. These are joined at the back with velcro tape (my personal touch to… Read More »