Our FSHD University webinar on January 27, 2022, was a revelation! We learned that the muscle weakness that causes scapular winging can lead to maladaptive, compensatory movements which themselves can result… Read More »
Shoulder dyskinesia in FSHD
Listening to my dreams
by Haviva Ner-David Part III of excerpts from Rabbi Ner-David’s book, Dreaming Against the Current I AM A tour guide for a large synagogue group visiting Israel, getting on and… Read More »
Re-igniting my passion
by Allison Calder, Salt Lake City, Utah This year, the Volunteer Leadership Summit came at just the right time for me. I had hit a slump as a chapter leader,… Read More »
Talking to my FSHD
by Haviva Ner-David Part II of excerpts from Dreaming Against the Current. I decided to talk directly to my disease. After thirty-two years, it was about time. “Are you willing… Read More »
Extraordinary Measures – Updating the standard of care for FSHD
by June Kinoshita, Director of Research and Patient Engagement Making sure that every person with FSH muscular dystrophy gets the best possible medical care is a high priority for us…. Read More »