An interview with Tim Hollenbeck, FSHD Radio host On the second Tuesday of every month, at 8 p.m. CT, Tim Hollenbeck fires up a live video stream on the FSHD… Read More »
“Our stories need to be shared”
Folding Lightweight Travel Power Wheelchairs
RWhich one is right for me? by Amy Bekier, San Diego chapter director Amy Bekier No one chooses to use a wheelchair, and many who are still mobile opt for… Read More »
More than a pretty pair of shoes
by Barbara Zehetbauer-Hoehl, Vienna, Austria Three years ago, I developed a symptom called foot drop caused by my FSHD Type 2. The biggest loss, which came with losing my muscles… Read More »
COVID-19 Vaccine Q&A
This Q&A is based on the December 9 webinar with Rabi Tawil, MD, and Ghinwa Dumyati, MD, from the University of Rochester Medical Center, and the January 15 webinar hosted… Read More »
The Mattering Effect
“When one door of happiness closes, another opens. But often we look so long at the closed door that we don’t see the one which has been opened for us.”… Read More »