Meet Jenny and Tony, our new FSHD University “adjunct professors.” Jenny and Tony are a married couple who share information and offer encouragement on their YouTube channel in the context… Read More »
YouTube series on interabled relationships
Help us grow our network
The future is in YOUR hands The FSHD community has an urgent challenge and a powerful opportunity to help support research studies and upcoming clinical trials. Currently, there are nearly… Read More »
Tips and tricks: Pencil grips
If you’re hand grip has weakened, here’s a product that could be helpful. Originally designed to help children grip a pencil properly, these pencil grips are manufactured from soft silicone… Read More »
Tips and Tricks – The IndeeLift
by Dani Liptak I get up in the middle of the night to use the bathroom. I take a step from my bed, reach for my walker, and instantly hit… Read More »
Finding a way to keep working
by Lynn Stevens, Bossier City, Louisiana About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to work full-time… Read More »