by Dani Liptak I get up in the middle of the night to use the bathroom. I take a step from my bed, reach for my walker, and instantly hit… Read More »
Tips and Tricks – The IndeeLift
Finding a way to keep working
by Lynn Stevens, Bossier City, Louisiana About 10 years ago, the progression of FSHD on my body forced me to begin evaluating whether I should continue trying to work full-time… Read More »
‘Eddie-mechanics’ was my secret to success
by Ed Barocas, Montclair, New Jersey In spring of 2019, I received two awards for my legal work, the New Jersey Law Journal’s Attorney of the Year Award, and the… Read More »
Member of the team
Getting involved in research is about so much more than helping yourself by Jim Albert, Eldersburg, Maryland Patients who are new to research may be trying to decide if clinical… Read More »
“Coming out” with my FSHD diagnosis
This story about “coming out” with an FSHD diagnosis was first published in the 2014 summer issue of the FSH Watch newsletter. Its message is timeless. The #FSHDselfies campaign by… Read More »