Saturday, June 8, 2019 2:00 pm – 3:00 pm Our Connecticut chapter director, Kathy Senecal, wrote in our newsletter about how this type of leg brace made a difference in her… Read More »
Webinar: Stance-control braces
Helping a songbird find her voice
Two weeks ago, we told you about the surprise $50,000 donation to the FSH Society in honor of Ann Blake. Now we learn in this heartwarming video that Blake did… Read More »
Webinar video: FSHD 101
In our webinar from May 22, Samantha LoRusso, MD, provides a concise introduction to the basic facts about FSH muscular dystrophy and answers dozens of questions from our live webinar… Read More »
Medicare coverage for ongoing maintenance physical therapy
Article adapted with permission from Melissa Fox, PT, DPT, University of Virginia Health System. There are times when a short course of physical therapy (PT) can meet your current needs,… Read More »
Everything you ever wanted to know about FSHD
(but were afraid to ask) There’s no doubt that facioscapulohumeral muscular dystrophy is a complicated condition. The challenge of pronouncing it correctly is a piece of cake compared to the… Read More »