by Haviva Ner-David This past August 9th was the first official meeting of FSHD Israel, initiated by my 18-year-old daughter Hallel after we represented Israel in the first International FSHD… Read More »
First Meeting of FSHD Israel
The journey of a forensic psychologist
by Heather Green There are moments in every life that are defining. We can live weeks, months, and years sometimes without having anything memorable happen, then in a flash, our… Read More »
USA Today features Carden Wyckoff
Those of us who spend (too much) time on Facebook may recall the envy-inducing photos posted last summer by Carden Wyckoff as she traveled solo with her wheelchair across Europe…. Read More »
Tips and tricks – The Stand Aid
Here’s a solution to a delicate problem: the Stand Aid PTA, or power-toilet assist. Several of our members have raved to us about this “life-changing invention” that restores independence and… Read More »
NAD+ supplementation may help aging muscle
Could it be helpful for FSHD? BY AMANDA HILL, HIGHLANDS RANCH, COLORADO In the current absence of a treatment for FSHD, many patients experiment with a variety of lifestyle or… Read More »