Join us via Facebook Live on Wednesday, January 30th, at 8:00 pm Central / 9:00 pm Eastern time for our live interview with two people from the Chicagoland area who… Read More »
FSH Society Radio – Two perspectives on living with FSHD
Webinar on swallowing and speech in FSHD
Wednesday, February 13, noon to 1:00 pm EST. Register here We are delighted to bring to you this live webinar with Kiera Berggren, a research speech-language pathologist (SLP) in the… Read More »
New England chapter meeting talks
The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted… Read More »
Finding beauty in disability
by AUBRIE LEE I have a disability. It has manifested differently throughout my life, I have felt differently about it in various stages of my life, and people have treated… Read More »
Holiday gift ideas
If you are scrambling for last-minute holiday gifts to delight the FSHers in your life, here are a few suggestions. We’d love to hear about your best holiday gift ideas… Read More »