Join us via Facebook Live on Wednesday, April 24, at 9:00 pm Central / 10:00 pm Eastern time (note change of time) for our conversation with Drs. Ora and Isaac Prilleltensky… Read More »
FSH Society Radio on Living, Loving, Caring, Sharing
Danny Kurtzman designs for life
The headquarters of Ezekiel Clothing is tucked in a bland office park in Irvine, California, but inside it’s anything but bland, with its too-cool-for-school interior of concrete, charred timber, and… Read More »
Mountains to climb
by Neenah Williams, Colorado Springs, Colorado I was diagnosed with FSH muscular dystrophy at the age of 16. I am now 27 years old and have started to feel more… Read More »
My journey continues
by Ian Rys, Port St. John, Florida When I turned 50, I began to feel I was moving and walking differently. I won’t lie: That scared me. I’ve always tried… Read More »
A slam poet’s take on living with FSHD
As with any aspect of the human condition, living with FSHD can inspire all forms of artistic expression. Cypriot Argyri Ioizou recently won his nation’s first-ever slam poetry competition. Congratulations!… Read More »