by Neenah Williams, Colorado Springs, Colorado I was diagnosed with FSH muscular dystrophy at the age of 16. I am now 27 years old and have started to feel more… Read More »
Mountains to climb
My journey continues
by Ian Rys, Port St. John, Florida When I turned 50, I began to feel I was moving and walking differently. I won’t lie: That scared me. I’ve always tried… Read More »
A slam poet’s take on living with FSHD
As with any aspect of the human condition, living with FSHD can inspire all forms of artistic expression. Cypriot Argyri Ioizou recently won his nation’s first-ever slam poetry competition. Congratulations!… Read More »
Tips and tricks: Nite Hood
Eye dryness during the night is a chronic complaint for those who can’t close their eyelids fully, as is often the case for people with FSH muscular dystrophy. One solution… Read More »
Tips & Tricks: Kinesiology tape to fix a droopy lip
Here’s a handy tip from Diana N: I was interested to read the Press’n Seal idea for stopping dry-eye. I don’t have that problem, but most of my face (except… Read More »