Eye dryness during the night is a chronic complaint for those who can’t close their eyelids fully, as is often the case for people with FSH muscular dystrophy. One solution… Read More »
Tips and tricks: Nite Hood
Tips & Tricks: Kinesiology tape to fix a droopy lip
Here’s a handy tip from Diana N: I was interested to read the Press’n Seal idea for stopping dry-eye. I don’t have that problem, but most of my face (except… Read More »
Miami FSHD Family Day Talks
Here are the agenda, speaker biographies, and presentation materials from our Miami FSHD Family Day Conference, which was held on Saturday, February 23, 2019, at the beautiful Newman Alumni Center… Read More »
Tips and tricks: Putting on a jacket
Tips and tricks: Putting on a jacket When you are in a wheelchair and can’t raise your arms, putting on a jacket can be a contortionist’s conundrum, even with the… Read More »
Fighting for life insurance
Excerpt from Howard Chabner‘s forthcoming FSHD Autobiography: I tried to find life insurance but brokers told me I was uninsurable because of my FSHD. Finally, one broker found a company… Read More »