by Nikki Young, Clarksburg, Maryland Like many others with FSHD, I have suffered from dry eyes. Weakness in the muscles around my eyes prevented me from closing my eyelids fully,… Read More »
Surgery fixed my eye problems
FSH Society Radio on Living, Loving, Caring, Sharing
Join us via Facebook Live on Wednesday, April 24, at 9:00 pm Central / 10:00 pm Eastern time (note change of time) for our conversation with Drs. Ora and Isaac Prilleltensky… Read More »
Danny Kurtzman designs for life
The headquarters of Ezekiel Clothing is tucked in a bland office park in Irvine, California, but inside it’s anything but bland, with its too-cool-for-school interior of concrete, charred timber, and… Read More »
Mountains to climb
by Neenah Williams, Colorado Springs, Colorado I was diagnosed with FSH muscular dystrophy at the age of 16. I am now 27 years old and have started to feel more… Read More »
My journey continues
by Ian Rys, Port St. John, Florida When I turned 50, I began to feel I was moving and walking differently. I won’t lie: That scared me. I’ve always tried… Read More »