Avoiding falls is especially challenging in cold winter climates, where even the most careful walker is no match for a patch of ice. Several of our members swear by strap-on,… Read More »
Tips and tricks: STABILicers light ice cleats
A modern take on muscular dystrophies
Here’s a very interesting post on Psychology Today by Jennifer Jo Brout, PsyD, about the need to raise public awareness around specific muscular dystrophies in the age of genomic medicine…. Read More »
Outstanding FSH muscular dystrophy care in Connecticut
By Kathy Senecal, Connecticut chapter director Last week some members of the FSHD Society and I attended the Community Advisors Gathering at the Hospital for Special Care in New Britain,… Read More »
Swallowing and speech in FSH muscular dystrophy
Our recent webinar featured speech language pathologist Kiera Berggren, from the FSHD clinical research center at Virginia Commonwealth University. Berggren has a passion for understanding and treating issues with swallowing… Read More »
Playing the hand you’ve been dealt
By Landon Poindexter One thing I have come to learn in my eighteen-year life is that no matter how hard you try, there is no avoiding hardships that are sent… Read More »