Here are the agenda, speaker biographies, and presentation materials from our Miami FSHD Family Day Conference, which was held on Saturday, February 23, 2019, at the beautiful Newman Alumni Center… Read More »
Miami FSHD Family Day Talks
Tips and tricks: Putting on a jacket
Tips and tricks: Putting on a jacket When you are in a wheelchair and can’t raise your arms, putting on a jacket can be a contortionist’s conundrum, even with the… Read More »
Fighting for life insurance
Excerpt from Howard Chabner‘s forthcoming FSHD Autobiography: I tried to find life insurance but brokers told me I was uninsurable because of my FSHD. Finally, one broker found a company… Read More »
Tips and tricks: STABILicers light ice cleats
Avoiding falls is especially challenging in cold winter climates, where even the most careful walker is no match for a patch of ice. Several of our members swear by strap-on,… Read More »
A modern take on muscular dystrophies
Here’s a very interesting post on Psychology Today by Jennifer Jo Brout, PsyD, about the need to raise public awareness around specific muscular dystrophies in the age of genomic medicine…. Read More »