A note to our families This morning, Fulcrum released top-line results of its phase 3 trial for Losmapimod. The results showed no difference between placebo and active ingredient groups. Therefore,… Read More »
A note to our families from CEO Mark Stone
Why put off getting hearing aids?
They’re now more affordable and available by Richard Holmes, Sandwich, Massachusetts If you’re straining to hear what people say, or find yourself cranking up the volume on your TV to… Read More »
It’s alive! It’s alive!
A space-age solution for eating soup by Amy Bekier, San Diego, California Hello, my fellow slurpy, sloppy FSHD superhero eaters! For many of us with FSHD, as our hands, wrists,… Read More »
Muscle loss with Ozempic® and similar drugs
What’s the risk to people with muscular dystrophy? by Rich Holmes, Sandwich, Massachusetts Heard about Ozempic, Mounjaro®, and related drugs and wonder if one might help you lose weight? That’s… Read More »
Better Nutrition for FSHD
The foods you eat impact your disease and can support improved muscle function in combination with supplementation and exercise. Using real FSHD patient food records, we will explore the journey… Read More »