Attendees at our FSHD Family Day conference in Baltimore this past Sunday enjoyed an excellent series of talks by the clinicians and researchers at the Kennedy Krieger Institute. Here are… Read More »
Mid-Atlantic FSHD Family Day presentations
Listen up! Columbus TV news features our Walk leader
Check out this audio from an interview with Sue Aumiller, director of our Columbus Ohio chapter, with Mark Blazor from Columbus’s top local station, 610-WTVN. Mark read the Columbus Dispatch’s… Read More »
For newly (and not so newly) diagnosed people
We have published a new e-brochure, “Not Alone,” by Kelly Mahon Hessler. Based on interviews with a wide range of FSH muscular dystrophy patients, parents, and partners, this e-brochure assures… Read More »
FSH Society Talk Radio: Marketer, mom, and advocate Taylor Quigg
Join us on September 26th, 9:00 PM EST / 8:00 PM CST for a live, on-air interview with Taylor Quigg, a wife and mother of two who lives in the suburbs of… Read More »
Don’t let this diagnosis limit you
When one path ended, a new one opened up by Nelson Dronet, Sulphur, Louisiana I would like to take a moment to share my story in the hope that it reaches… Read More »