The University of Massachusetts Medical School’s Wellstone Center for FSHD Research is a leading team of scientists dedicated to understanding FSH muscular dystrophy and developing treatments. The center kindly hosted… Read More »
New England chapter meeting talks
Finding beauty in disability
by AUBRIE LEE I have a disability. It has manifested differently throughout my life, I have felt differently about it in various stages of my life, and people have treated… Read More »
Holiday gift ideas
If you are scrambling for last-minute holiday gifts to delight the FSHers in your life, here are a few suggestions. We’d love to hear about your best holiday gift ideas… Read More »
Freedom Through AFOs
by ROD FULMER, McDonough, Georgia Who wants to wear ankle braces? I wish I didn’t have to wear any, but because I need them, I’m glad I found carbon fiber braces… Read More »
Our Guide for Schools
The FSH Society’s Guide for Schools is available online for download and print here. Created by a team of national experts, this booklet provides information about FSHD and the impact… Read More »