From the department of silver linings by Jeff Gibler, Humble, Texas When I was a kid we would come to the United States during the summer to visit my paternal grandparents… Read More »
Me and my cowboy boots
Managing breathing issues
Notes from our webinar with John Bach, MD by June Kinoshita, FSH Society The best practices for managing breathing issues were the subject of the June 19, 2018, FSH Society webinar… Read More »
Spotlight: Skylar Conover
Ms. Wheelchair USA 2015-2016 By Nicky Williams Dexter [box] A message from Nicky about the Spotlight series: “Feeling connected to others living with FSHD has been a blessing to me… Read More »
Mid-Atlantic FSHD Family Day registration is open
The preliminary agenda and registration are now available for our first Mid-Atlantic FSHD Family Day Conference. It will be held in Baltimore, MD. Co-organized with Kathryn Wagner, MD PhD, and… Read More »
Webinar with Doris Leung, MD PhD, on MRI insights into FSH muscular dystrophy
Here’s the recording of our FSH Society webinar on August 1, 2018. Dr. Leung is a neurologist at Kennedy Krieger Institute Center for Genetic Muscle Disorders and an assistant professor in… Read More »